USP7 Awareness Day
April 7, 2018
Donation Warrior
Make a recurring monthly donation and become a Donation Warrior.
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Faces of USP7
What Support Means to the Families
"To feel supported and connected can be a lifeline at times.
Knowing so many people across the globe are caring and invested with us means more than words can express."
Knowing so many people across the globe are caring and invested with us means more than words can express."
USP7 Mom - Britt
"I’m not the only one! There’s other kids like me!!"
--Ella-Marie
How Your Donation Helps
Your donation will help fund important research. Our immediate need is to fund the Phenotyping Study being conducted by the Schaaf Lab. Our long-term goal is to raise $5 million dollars over the next two years.
This money will go directly to researches to study the USP7 gene and find a cure!
This money will go directly to researches to study the USP7 gene and find a cure!
The Phenotyping Study is the biggest effort we need to fund in 2018. This study will further define USP7-related diseases as a neurodevelopmental disorder and lead to more research.
Patients participating in the study will have a variety of tests performed such as, lab work, DEXA scan, lumbar puncture and more. Each patient participating will have to travel to Houston, TX.
Faces of USP7
What Support Means to the Families
"I'm so grateful for the Foundation and the efforts put forth by the families and the researchers.
I'm also extremely grateful to those who support us through donations and our ambassadors. Without this support we would not be able to accomplish what we need to for our children."
USP7 Mom - Becky
