USP7 Awareness Day
​April 7, 2018

Donation Warrior

Make a recurring monthly donation and become a Donation Warrior.
Recurring Donation

Donation Hero

Make a one-time donation today and become a Donation Hero.​​
One-Time Donation

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Faces of USP7

What Support Means to the Families

"To feel supported and connected can be a lifeline at times. 

Knowing so many people across the globe are caring and invested with us means more than words can express."
​USP7 Mom - Britt

"I’m not the only one! There’s other kids like me!!"
--Ella-Marie

How Your Donation Helps
Your donation will help fund important research. Our immediate need is to fund the Phenotyping Study being conducted by the Schaaf Lab. Our long-term goal is to raise $5 million dollars over the next two years.

​This money will go directly to researches to study the USP7 gene and find a cure!
The Phenotyping Study is the biggest effort we need to fund in 2018. This study will further define USP7-related diseases as a neurodevelopmental disorder and lead to more research.

Patients participating in the study will have a variety of tests performed such as, lab work, DEXA scan, lumbar puncture and more.  Each patient participating will have to travel to Houston, TX.

Faces of USP7

What Support Means to the Families

"I'm so grateful for the Foundation and the efforts put forth by the families and the researchers. 

I'm also extremely grateful to those who support us through donations and our ambassadors. Without this support we would not be able to accomplish what we need to for our children."
​USP7 Mom - Becky

Interested in Doing More for the Foundation?

If you would like to learn more about ways you can help us consider becoming a USP7 Ambassador or visit our " Get Involved " page to learn how you can fundraise for the Foundation. Both of these are excellent ways to help those diagnosed with a USP7-related disease.

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