Bo Bigelow
Bo Bigelow
Bo is a writer, author, and attorney. He became a rare-disease advocate when his daughter Tess was born with a USP7 mutation.
When genetic testing reached a dead end for Tess, Bo and his wife successfully used social media to launch their search for answers and connect with researchers at Baylor College of Medicine. He made a short film about their search. Click Here To Watch
He hosts a blog and weekly podcast called Stronger Every Day, about the challenges of raising Tess.
He is also a co-founder of Disorder: The Rare Disease Film Festival.
Bo holds a B.S. from Georgetown University and a law degree from New York University School of Law.
He is of counsel to Murray, Plumb & Murray, a law firm in Portland, Maine.
When genetic testing reached a dead end for Tess, Bo and his wife successfully used social media to launch their search for answers and connect with researchers at Baylor College of Medicine. He made a short film about their search. Click Here To Watch
He hosts a blog and weekly podcast called Stronger Every Day, about the challenges of raising Tess.
He is also a co-founder of Disorder: The Rare Disease Film Festival.
Bo holds a B.S. from Georgetown University and a law degree from New York University School of Law.
He is of counsel to Murray, Plumb & Murray, a law firm in Portland, Maine.
Chairman and Co-Founder
Chairman and Co-Founder